Article | December 12, 2016

Maximizing Patient Recruitment And Retention In Rare Disease Research

Source: Worldwide Clinical Trials

By Jeffrey Zucker, Vice President, Feasibility and Recruitment Optimization, and Barbara Zupancic, Director, Global Patient Recruitment and Retention, from Worldwide Clinical Trials.

Maximizing Patient Recruitment And Retention In Rare Disease Research

By Jeffry Zucker, Vice President, Feasibility and Recruitment Optimization, and Barbara Zupancic, Director, Global Patient Recruitment and Retention, from Worldwide Clinical Trials.

Creating a pharmaceutical development program for the treatment of a rare disease is challenging. From recruiting and retaining patients and investigators, through to regulatory uncertainties and limited understanding of the natural history of the proposed indication due to few observational trials studying disease progression, there are many considerations and hurdles to overcome.