More Than A Resource For Rare Disease

By Justin Gambill, Manager, Program Management

Over the course of my 14+ years in healthcare I’ve had the tremendous privilege of spending most of my career in the rare disease space. During this time I’ve had the opportunity to visit some of the premier medical facilities in the nation treating some of the most rare childhood diseases.

I’ve had the honor of meeting patients and speaking with families impacted by these diseases. Every time I have an opportunity to learn from these amazing individuals, I try to bring something back with me that will enhance their experience with our support services. Though I am no clinician, and cannot take away the pain and suffering that many face on a daily basis, there are a few things I (we all) can do to positively impact the lives of people living with rare diseases.