Case Study

Global Rare Disease Decentralized Registry Improves Participant/Caregiver Experience And Increases Engagement

Source: THREAD
GettyImages-1329798874 rare disease ps


For 13 years, PPMD has kept and managed the world’s largest registry of patient reported outcomes for Duchenne Muscular Dystrophy

  • This registry was web-based and possessed many outdated features, including the inability to collect data remotely, leading to lower-than desired registration numbers and limited engagement from registrants
  • To improve recruitment, inclusion, engagement and compliance, PPMD needed a platform that provided the remote technology that participants and caregivers wanted

To find out the solution and results, download the available case study.

To learn more about THREAD, visit their Clinical Leader page.


Get unlimited access to:

Trend and Thought Leadership Articles
Case Studies & White Papers
Extensive Product Database
Members-Only Premium Content
Welcome Back! Please Log In to Continue. X

Enter your credentials below to log in. Not yet a member of Clinical Leader? Subscribe today.

Subscribe to Clinical Leader X

Please enter your email address and create a password to access the full content, Or log in to your account to continue.


Subscribe to Clinical Leader