How Sponsors Can Make It Easier For Rare Disease Patients And Families To Participate In Trials

By Rachel Smith, Global Head of the Rare Disease Center of Excellence, Parexel

A recent study was conducted to gain insights into the experiences of patients and their caregivers living with rare neurological disorders. Rachel Smith, the Global Head of the Rare Disease Center of Excellence, shares key findings from this research, offering valuable strategies for sponsors to improve patient recruitment and retention in clinical trials targeting neurological conditions.

For those interested in the research methodology, we provide a detailed description at the conclusion of this Q&A.