Leveraging Empowered Patients To Build Better Clinical Registries

Clinical registries constitute an integral aspect of the research spectrum. The capacity to gather data about distinct patient populations and consolidate them within a centralized repository is immensely beneficial across all stages of clinical research, notably for post-approval surveillance. Regrettably, populating these patient registries entails substantial expenses. In certain therapeutic domains, such as neurodegenerative disorders like Alzheimer’s and Parkinson’s disease, recruitment costs can surpass $100k per patient.

This article highlights the potential of decentralized trials and patient-centric approaches to enhance patient recruitment and retention in clinical registries. Through an approach created by Crucial Data Solutions, patients would be able to find and register themselves, reducing costs and increasing efficiency. An initial trial with a COVID-19 patient registry quickly attracted 50 registrants without any promotional efforts. This suggests that a shift towards raising awareness of registry opportunities, rather than active recruitment, could be more cost-effective.

Unearth more information about the importance of patient involvement in healthcare decisions and the value of their data in improving the design and implementation of clinical trials by reading the article below.