Patient Recruitment Challenges In Rare Disease Studies

In Q2, 2020, ISR asked 125 respondents involved in patient recruitment and retention activities for rare disease studies about challenges they face while recruiting patients. The data below show the most challenging issue reported by respondents in finding patients for their recent rare disease studies was Multiple sites with access to only a few patients (42%). Followed by Multiple entities pursuing same small pool of patients (19%) and Rigid inclusion/exclusion criteria leading to high screenout rate (15%). For more information, follow the link to the Designing for Recruitment and Retention in Rare Disease Studies report preview.