Prioritizing Patient Voices

In rare oncology, patient-reported outcomes (PROs) are emerging as a vital tool for capturing the real-world impact of anti-cancer therapies. As traditional clinical endpoints often fall short in reflecting the full spectrum of patient experience, PROs offer a more nuanced view of treatment benefits, risks, and economic implications. Their integration into clinical trials not only enhances relevance but also strengthens patient engagement and ensures that the evidence generated aligns with what truly matters to patients and caregivers. This article examines how PROs can reshape trial design, improve the interpretation of study results, and inform future research directions in rare cancers.

For clinical teams and researchers looking to elevate the value of their studies, learn why understanding the role of PROs is essential.