Case Study

Supporting Multiple Registries With A Single System

Source: Forte Research Systems, Inc.

Registries are created for a wide range of purposes that include such goals as recruiting patients for clinical trials, tracking treatment plans for tumor boards, determining study feasibility, conducting retrospective chart reviews, and evaluating outcomes.

Typically, these registries are maintained in various locations and formats throughout an institution. Individual investigators utilize their favorite database tool or spreadsheet and maintain autonomous control over their specific registry of interest.

In the current environment, there are several opportunities for improvement. Within a typical institution, the various registries:

  • Require manual entry of data, many of which are duplicative of those in other systems
  • Are largely inaccessible to all but the controlling parties
  • Are seldom leveraged for more than their original purpose
  • Often fail to meet HIPAA requirements for protecting patient data