The Future Of Rare Disease Research

Each rare disease research breakthrough offers the promise of a longer, better life for patients who otherwise may have no meaningful options. Because of this, patients grappling with rare diseases are unique within the world of clinical trials—they’re often highly motivated and eager to take part in research. Typically, they are more-informed about their disease than the average patient and are actively seeking out possible treatments. Fortunately, decentralized clinical trials (DCT) and FAIR data principles are well-poised to meet their needs and push research further, faster. 

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