Unifying Research - Patient Negative One And Christine Von Raesfeld

Clinical research is changing quickly, and the people closest to that change are asking important questions about who benefits, who is protected, and who gets a voice. In the season two premiere of Unifying Research, Kaye Doiron brings the perspective of a research innovator and serial entrepreneur working to turn bold ideas into practical tools for clinical trial sites. From the Patient Negative One concept to AI-driven site support, her work challenges familiar assumptions about how trials are designed and delivered. Christine Von Raesfeld adds the perspective of a rare disease patient and advocate helping shape the Patient AI Rights Initiative, a framework focused on autonomy, ethics, and trust in an AI-enabled healthcare environment.

Together, their stories point to a future where innovation must remain deeply connected to patient experience.