What Death Might Teach Us About Better Clinical Research

In this deeply personal talk, Lindsey Wahlstrom-Edwards shares the lessons she learned as both a clinical research professional and a mother navigating her daughter Rona’s rare disease treatment. Through her experience, Lindsey challenges conventional thinking around clinical trials, highlighting the need for clearer communication, greater patient autonomy, and a stronger focus on quality of life. With six powerful ideas for reimagining pediatric research, she calls for a balance between the magic of science with the magic of life.