Recruiting for clinical trials presents considerable challenges, such as stringent inclusion and exclusion criteria, inconvenient site locations, and time commitments. Pam Cusick of Rare Patient Voice shares insights into participant needs and overcoming hurdles.
Hear SYNGAP1 Foundation President, CEO and Founder Monica Weldon discuss the foundation’s work for patients with SYNGAP1 and related overlapping neurological disorders in this episode of Driving the Discussion with Scout.
Dr. Charles Steward discusses the patient experience from his unique perspective as a rare disease dad and genome scientist. Watch now for a deeper understanding of patient experiences and optimizing research studies to serve this special patient population.
In this webcast, Pam Cusick, Senior Vice President of Rare Patient Voice, delves into the intricate nuances of the patient experience, offering invaluable insights into enhancing patient education and fostering advocacy within the rare disease community.
