Optimizing The Rare Disease Patient Experience

Recruiting participants for clinical trials poses considerable challenges. The stringent inclusion and exclusion criteria, inconvenient site locations for patients, and the time commitment required can all create obstacles. These challenges become even more pronounced for individuals with rare diseases who wish to enroll in a clinical trial. To gain insights into what rare disease patients seek from the clinical trial experience and to explore ways to optimize studies to better cater to their needs, continue reading.

In this article, Pam Cusick of Rare Patient Voice provides valuable insights into rare disease participant needs and ways to optimize clinical trials for enrollment and retention.