For Rare Diseases With No Standardized Treatment Strategy, Insights Can Help Inform Next Steps In Patients' Journeys

By Komodo Health and the Foundation for Sarcoidosis Research

Komodo Health analysts partnered with the Foundation for Sarcoidosis Research (FSR) to determine prevailing disease trajectories and treatment patterns for patients with sarcoidosis, a rare inflammatory disease affecting 200,000 Americans. With the study of rare diseases, such as sarcoidosis (whose cause remains unknown), healthcare providers struggle to comprehend and treat. The complexity increases when a limited number of patients contributing to research are experiencing different symptoms, indicating that disease trajectories will be highly variable.

In working to treat sarcoidosis, options are limited because of knowledge gaps and the complicated clinical picture this disease presents. An analysis of the affected community also discovered that the rare inflammatory disease disproportionately affects Black communities.

This article discusses how insights can help guide patients with rare diseases without standardized treatment options. By utilizing real-world data, healthcare providers can better understand patient journeys and make informed decisions about the next steps in their care. Discover how data-driven insights can generate outcomes for those with rare diseases.