Focus on Patients
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Inside Novo Nordisk’s Patient Advisory Board Meetings
6/2/2020
Novo Nordisk's first DEEP (Disease Experience Expert People) Advisory Board meeting brought together leaders of patient organizations, patient advocates, and patients from five countries to participate in a dialogue with the company's Global Patient Relations team, project vice presidents, medical specialists, and trial managers.
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What Patients Are Telling Sites About Trial Participation During COVID-19
5/28/2020
LMC Manna conducted interviews with patients who are currently enrolled in a Phase 3 clinical trial at one of their sites, with questions focusing on the impact of COVID-19 during their trial participation. Here's what they had to say.
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Post-COVID-19 Clinical Trials: Finally Understanding The Meaning Of Patient-Centricity
5/27/2020
Despite being instrumental to our mission of making lifesaving therapies accessible to all, patient perspectives are far too often lost in the wake of “flashier” news about COVID-19 therapy approvals, supply chains, and scientific breakthroughs.
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How Do Underserved Communities Prefer To Learn About Clinical Research?
5/5/2020
It is important to look at the big picture and better understand core participation motivators and barriers from the underrepresented patient’s perspective in order to better enable access to and increase their participation in clinical trials.
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4 Steps Takeda Discovered To Improve Patient-Physician Dialogue
4/16/2020
To gain insight on the crucial dialogue between patients and their doctors when discussing treatment goals, expectations, and long-term outcomes, Takeda Oncology developed the Multiple Myeloma Patient-Physician Dialogue Index. While each patient’s treatment journey is unique, the Index revealed four key findings that may help improve patient-physician dialogue.
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What Pharma Can Learn From A Parent Turned Patient Advocate
4/2/2020
I am humbled and honored to introduce you to Andrew McFadyen — founder of the Isaac Foundation. Andrew is a husband, a father, and an advocate who tirelessly works to advance actionable dialogue around access, care, and policy for patients with rare diseases. Recently, I had the opportunity to chat with Andrew about the unique challenges that patients and their families face when dealing with serious illness and how we may better serve their needs.
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How Pfizer Is Using Wearables To Understand The Patient Experience
3/24/2020
Learn how Pfizer's Early Clinical Development – Digital Medicine and Translational Imaging (DMTI) team works with internal and external partners to integrate technology into clinical trials, so it can gather robust data on how patients experience disease outside of a clinical setting.
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Inside Janssen’s Systematic Approach To Patient Engagement
3/5/2020
Learn about the work of Janssen's integrated, cross-functional Global Patient Engagement Leadership Team, which has been tasked with embedding patient engagement into every facet of the organization. Specific examples discussed include the development of a psoriasis symptoms PRO tool, collaborations with HIV patient advocacy groups, and progress measurement via a patient engagement dashboard.
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Extension Of The Patient: Expanding The Role Of Caregivers In Biopharma Development
2/18/2020
For medical product developers, the role of the caregiver is increasing as innovation advances. Caregivers may provide input on clinical trial concepts, protocol design, informed consent creation, and may also improve clinical trial recruitment and retention.
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Twitter Takeovers: Forging Stronger Connections With Patient Communities
2/4/2020
Learn how Tiburio Therapeutics is using Twitter takeovers, advocacy outreach, and collaboration on social media to enhance the company’s efforts to accurately capture the patient’s voice and ensure it is incorporated into future trial designs.