Focus on Patients

41. Why We Need More Women In Clinical Research — Now 1/10/2024

    Society’s tendency to view the male body as “default” has had relatively benign, if not uncomfortable, effects. But, gender bias can have serious consequences, including in clinical research.

42. What Rare Disease Patients Want Sponsors To Know 1/9/2024

    A rare disease caregiver and patient, Sabina Kineen hopes to shine a light on the importance of clinical trial education for patients and caregivers and how sponsors can support them.

43. What Experts Think Will Happen With Patient Centricity In 2024 12/27/2023

    In part two, experts discuss patient centricity themes, including diversity, equity, and inclusion (DEI) and precision medicine, in the clinical trials industry as we move into 2024.

44. When A Rare Disease Partnership Evolves Into A Global Effort 12/21/2023

    Marked by a gradual evolution from small, meeting-oriented work to a transformative initiative, the FSHD Society and Fulcrum Therapeutics partnership in rare disease research exemplifies the power of trust and shared commitment.

45. An Overview Of Patient Service Programs Technology 12/15/2023

    Discover all the applicable technologies aimed at improving patient adherence, patient access, patient affordability, and patient advocacy.

46. New Calculator Could Help Trial Participants And Sponsors Determine Costs And Fair Compensation 12/14/2023

    Try the industry’s first open access financial burden calculator to help patients, sponsors, and other stakeholders estimate the cost burden patients may face. 

47. Developing A Diversity Action Plan That Actually Works 12/7/2023

    A successful diversity action plan (DAP) requires contributions of multiple cross-functional teams who are collectively well resourced and financed. Consultant Devra Densmore explains.

48. How To Measure Progress In Improving Clinical Trial Diversity 11/22/2023

    CTTI Diversity project’s makes recommendations for more diverse clinical trials and presents a maturity model to help sponsors develop or improve sustained clinical trial research infrastructure.

49. How Pfizer Prioritizes Diversity When Implementing Multiple Myeloma Trials 11/21/2023

    Every patient deserves the chance to feel seen, heard, and prioritized in research and care — and for Black individuals with multiple myeloma, it’s a matter of urgency. 

50. Medical Director, PI, And Educator: A 3D Perspective On Diverse Patient Enrollment 11/13/2023

    Based on experiences as a medical director, an IRB board member and PI, and an academician, Monique Gary, DO, MSc, FACS, FSSO, discusses diverse patient enrollment as well as ways in which sponsors, sites, advocates, and others can better serve minority and LGBTQ+ trial participants.