Focus on Patients

  1. Patient-Powered AI Is Driving Science And Innovation Forward 5/17/2023

    Drug discovery is a game of information: If we understand disease well, we know where to intervene and how to design a molecule to target the disease. AI can be used to integrate the patient experience and voice into solutions, further enhancing their relevance. 

  2. Advancing Innovative Therapies For Mild-To-Moderate Psoriasis With Novel PASI-HD Assessment 5/8/2023

    The Psoriasis Area and Severity Index, or PASI, was developed in the 1970s as a tool for assessing the severity of psoriatic lesions for the purpose of assessing outcomes in a psoriasis clinical development program. But it falls short in assessing the severity of the disease in those wild mild to moderate psoriasis. Enter PASI-HD.

  3. Patient-Centric Clinical Development For Rare Disease Treatments 4/28/2023

    Incorporating patients into every step of the process is integral to overcoming obstacles related to clinical development of rare disease treatments. Obtaining early patient input, designing meaningful clinical trials, and considering manufacturing strategy early is crucial.

  4. New Advancement Toward The First Primary Endpoint Qualification Of A Digital Endpoint For Duchenne 4/27/2023

    Current methods for assessing ambulatory function in patients with Duchenne muscular dystrophy do not fully reflect how they experience DMD in their daily lives. Now, researchers have developed a new endpoint measured by a wearable device that records a patient's fastest spontaneous strides outside the clinic. What's more, it could become the first-ever digital primary endpoint approved by regulators.

  5. More Focus And Funding Becomes Crucial To Curing Colorectal Cancer 4/12/2023

    Advancements in the treatment of colorectal cancer have undoubtedly been made in recent years, but unfortunately, they are not enough to combat this deadly disease. Fight Colorectal Cancer President Anjee Davis addresses the critical lack of funding for colorectal cancer clinical trials and treatment options.

  6. AI And Healthcare Disparities: Driving A Wedge Or Closing The Gap? 3/31/2023

    The enthusiasm for the role of AI in upgrading global health and care provision is justified, provided we understand that the path to success is just as much about communication and collaborative development as it is about the raw potential of the technology itself. Because realizing this technological potential requires us to consider the role of people and processes in an integrated approach.

  7. Pediatric Patient Voices Influence Changes In Osteosarcoma Clinical Trials 3/2/2023

    Clinical research has long told patients what they need rather than asking. This has been especially true for treatment involving children. And while doctors are experts in how to treat a disease, patients are experts in how they feel. Thankfully, pediatric patients’ voices are now being heard, thanks in part to MIB Agents and its Junior Advisory Board.

  8. Improving Health Literacy: Breaking Barriers To Quality Cancer Care 2/24/2023

    Cancer care often revolves around what’s new, from the latest methods to detect and diagnose cancer to groundbreaking treatments. But an old challenge persists: Limited health literacy can stand between patients and breakthrough treatments. Pfizer's Dany Habr discusses way to improve patient literacy across multiple channels.

  9. Faster, Easier, and More Anxiety-Inducing: Are DHTs Harming Patients’ Mental Health? 2/2/2023

    Digital health technology (DHT) filled the communication gap created by physical distance during the pandemic, but have we created more space between participant and provider as we increasingly introduce and rely upon technology?

  10. How One Pharma Exec Uses Her Father’s Cancer Experience To Better Patients’ Clinical Journeys 1/23/2023

    Until pharmaceutical executive Christina DiArcangelo's father became a Stage 4 oncology patient, she wasn't wholly aware of the shortcomings of clinical trials. Now, buoyed by personal experience, she's dedicating her professional and personal pursuits to improving the patient experience.