Focus on Patients
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Incorporating SOGI Data In Clinical Research And Impacts On Enhancing Cancer Treatment Outcomes
2/2/2024
Collecting and measuring SOGI information in cancer care and clinical trials is critical to ensuring equitable and effective care for all individuals.
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4 Things I’m Looking Forward To At SCOPE 2024
2/1/2024
The Summit for Clinical Ops Executives (SCOPE) begins Feb. 11. Discover four things Executive Editor Abby Proch is looking forward to at the annual event.
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Ensuring Diversity And Accessibility In Neurological Research
1/26/2024
The landscape of neurological and rare disorders is as diverse as the human population it affects. Yet, clinical trials for these conditions have not always mirrored this diversity.
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Understanding Precision Neuroscience As Treatment For Rare Autoantibody Disease
1/19/2024
J&J Innovative Medicine develops precision therapeutics in neuroscience, reducing the trial participation and treatment burdens on people living with generalized myasthenia gravis.
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Patient Engagement Needs More Benefit Analysis, Fewer Theoretical Conversations
1/12/2024
Are companies just tagging on to the status quo of being “patient-centric” without fully analyzing the return on investment for their company? Consultant and patient advocate Ella Balasa discusses.
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Why We Need More Women In Clinical Research — Now
1/10/2024
Society’s tendency to view the male body as “default” has had relatively benign, if not uncomfortable, effects. But, gender bias can have serious consequences, including in clinical research.
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6 Things Rare Disease Patients Want Sponsors To Know About Clinical Trials
1/9/2024
A rare disease caregiver and patient, Sabina Kineen hopes to shine a light both on the importance of clinical trial education for patients and caregivers and on the specific ways sponsors can support them.
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What Experts Think Will Happen With Patient Centricity In 2024
12/27/2023
In part two, experts discuss patient centricity themes, including diversity, equity, and inclusion (DEI) and precision medicine, in the clinical trials industry as we move into 2024.
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When A Rare Disease Partnership Evolves Into A Global Effort
12/21/2023
Marked by a gradual evolution from small, meeting-oriented work to a transformative initiative, the FSHD Society and Fulcrum Therapeutics partnership in rare disease research exemplifies the power of trust and shared commitment.
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An Overview Of Patient Service Programs Technology
12/15/2023
Discover all the applicable technologies aimed at improving patient adherence, patient access, patient affordability, and patient advocacy.