Focus on Patients

  1. Listen Up, Pharma: C. diff Patient Advocate Shares Tips To Better Understand Patients 5/8/2025

    The Peggy Lillis Foundation CEO Christian John Lillis discusses his experience advocating for C. diff therapies, highlighting some successes as well as shortcomings in feeling heard.

  2. Caregiver Distress: The Hidden Burden Of Dementia With Lewy Bodies — And Why Measuring It Matters 5/7/2025

    Taking care of a loved one can be challenging. Cognition Therapeutic experts contend that caregivers’ distress levels must be evaluated to better understand the impact of dementia with Lewy bodies (DLB) on patients, families, and society.

  3. DEI Was Never the Problem, The Way Pharma Did It Was 5/5/2025

    Consultant Denise Bronner details pharma's strategic rollback of DEI initiatives, roles, and even departments and explains why well-meaning but misguided intentions enabled their demise.

  4. The Future of Glaucoma Therapy: Adaptive Trial Design and Patient-Centric Protocols 4/25/2025

    Perfuse Therapeutics' Sevgi Gurkan, MD, discusses the company’s use of functional and structural endpoints, exploratory biomarkers, adaptive trial design plans, and patient-centric protocol development.

  5. Promising Clinical Trial Updates Shared At The American Academy Of Neurology Conference 4/24/2025

    The 2025 American Academy of Neurology (AAN) conference in early April saw some promising clinical trial updates treating Guillain-Barre Syndrome and Huntington’s Disease, CIDP, and ALS.

  6. Racial Inequities In Medicine: The Consequences Of Historical Unethical Experimentation In Clinical Trials 4/22/2025

    In part two of this series on racial inequities in clinical research, the authors discuss the impact those trials have had on clinical research in the Black community, especially for women.

  7. Racial Inequities In Medicine: The History Of Unethical Race-Based Experimentation 4/21/2025

    Unethical and even brutal clinical research of the 19th and 20th centuries targeted the Black community. Discover how the medical mistreatment of Black patients and participants shaped how the community sees trials today.

  8. "A Long Way To Go": Patient Wants Better Listening From Pharma 4/15/2025

    Aspirin exacerbated respiratory disease (AERD) patient advocate Rhonda Nelson shares her patient experience and explains how she thinks pharma companies can better integrate the patient voice into clinical trial design. 

  9. Gilead Prioritizes Women With Its First HIV Cure Trial In Africa 3/28/2025

    Gilead’s Head Of HIV Cure Program Strategy Devi SenGupta discusses the challenges and triumphs of a groundbreaking HIV cure trial in South Africa.

  10. As FDA's "Sex Differences" Guidance Reemerges, UCB Reaffirms Importance Of Including Women In Clinical Research 3/26/2025

    UCB Biopharma's Marie Teil explores reasons to prioritize women's inclusion in research and how FDA guidance is poised to support that endeavor.